One of the hardest things through this was I had to know in my heart I was making the right decision. I could not take you off life support thinking what if and if only. I had to know in my heart this was the right course and that you chose it, that I was just honoring your wishes. I learned that you had been speaking to me in your own way through this journey. Times when I was being stubborn or refusing to see the pink elephant sitting in the room you would find a way to open my eyes and see the truth, to just see you, to hear you. Just like with your music, I had to listen and feel the lyrics to understand what you were feeling and saying to me. Your body was singing their own lyrics and I had to be still and listen. My heart was shattering into billions of pieces but there was nothing I could do to stop what was happening to you. Your body just couldn't take this any more but David you know I can't give up hope, it's all I got right now. Monday you were going to be removed from the respirator and at that time if you choose to continue to breath on your own and got stronger then it was God's will you stay here with me. If not then we were ready to except you going to heaven but oh my God I'm praying, praying PRAYING you breathe. Im not ready for goodbye. I secretly don't believe I will live if you die. Just breathe!!!
Sunday night your heart rate shot up again like it did the night we went home to sleep. For 2 hours we stood holding your hand while the team worked on you to try and stabilize your breathing and heart rate. They shot you full of drugs and nothing was helping. The nurse said if they didn't get you stabilized soon that you wouldn't live for another hour. I felt my knees go weak, I wanted to go with you. My body and mind was so tired I don't think I could do this any more. I held your hand to my lips and just broke down crying telling you Im not strong enough and just like that your heart rate & oxygen went back to normal. They said you heard me and we all declared it a total David moment. I think you were preparing me for Monday but our biggest battle was yet to be fought.
This journey has been so long and painful but it's also been very joyful. I know that sounds odd but my family and David's best friends stayed at the hospital for this whole week just lifting each other up. In that time we talked and joked, laughed and cried. Every story told was something about you. You are bigger than life and have touched so many people that I didn't realize just how totally insane, crazy, funny, klutzy, goofy & absolutely amazing you really are to others outside of our home. Through all these crazy stories being told on a minute basis in the hospital, the team that worked with you got to know you through all us and fell in love with you. They saw all the pictures of you on our phones and I was amazed again by how many pictures everyone had. I could see you were in the best care ever because these people loved you and cried for you too. There were times when I was breaking down and your nurse would be lifting me up from the floor while she held me so tight and cried her eyes out with me. Your doctor did the same thing with Rick. Your nurses were swapping shifts with other people to make sure they were the ones taking care of you & not strangers. That alone is amazing in any hospital setting. They also all planned on being with you tomorrow when the respirator will be removed
The time was set for Monday at 4:00 pm to remove your respirator. We called in the whole family to let them know what was going on and ask those who wanted to say good bye to you to come on up. I told all of them that this was not a funeral because you were very much alive and that you could hear them. We all set up and watched the Chiefs game with you on Sunday and told you about the game, play by play so you knew your team was kicking some serious ass that day. We mourned with you over the Arkansas & Alabama game. We talked and stayed together all night long. I wanted to drink in every moment with you that I could ever have and bottle it up forever if this was going to be my last night with you. I hurt so bad but I'm trying to be strong for you. I'm so scared and I feel very alone even though I'm surrounded by people. This is just insane what I'm doing.
A couple days before all this a lady came in your room and gave me this beautiful hand made lap blanket that some church ladies made. She told me that every stitch in that blanket, a prayer was said for you so that when it was laid over you that you were covered in prayers. I thought that was just too cool. Sunday night I laid down beside you and covered us both up with your prayer blanket. It was covered with my tears by morning. I had a hard time accepting that you were alive, you were warm, I watched you breath, I listened to your heart beat, I felt your breath on my cheek, ran my hands through your beautiful hair, wiped little tears from your face, but you were going to possibly die around 5 the next day. I kept telling Rick that it was almost like an execution. He reminded me at that moment that this was all in God's hands and your hands. If you were not ready to go home to heaven and God was not ready to take you then when the respirator was removed, you would live. He was right. He just had to keep telling me that.
Monday morning came & I started watching the clock a little closer. The nurses were trying to make sure I ate & drank. I never knew until then that you could dehydrate from crying. That's a lot of tears. I now understand it.
By noon the clock was beginning to overwhelm me. The nurses made me sit with the clock behind me. I just kept kissing your cheek, you nose, your forehead, I lay down beside you and just held you. I bet I covered you with a lifetime of kisses and it's still not enough. I kept thinking that all this, the kisses, the touching, the seeing the feeling was about to end forever and it would send me into panic mode that made me kiss you & love you more.
By 1:30 pm your nurse said they were going to allow the family & friends to come in one at a time if they choose so they could tell you goodbye or just have their own private moment with you. I know when I was alone with you I'd pour my heart out to you, you knew everything I felt because I held nothing back. I wanted the people who loved you to have that same time with you. Your nurse also said that some people will need this because it's harder for them with large groups. She was right. People that usually just stood to the side and didn't approached you because they didn't want to take my time with you away needed that time to talk to you as much as I needed it. During this time I learned that you had been accepted as a donor after your blood work had been completed.
Welcome to the 1% group. Leave it to you to be different than the other 99% of the population.
At around 3:30 I broke down. I knew the time was getting close. There was only 1 hour left. I panicked big time. I told you I couldn't do this, I didn't want to do this. I told you to just wake up and lets just go home. I didn't know if I was making the right decission or not. I told you I couldn't live with myself if I made the wrong decission and all the "what if's" that I knew would haunt me the rest of my life. I was holding your face watching my tears soak you begging you. Rick was crying standing behind me because the pain was so unbearable at that moment I thought I couldn't possibly breathe.
At that very moment I'm breaking down hard your heart rate shot up to 235 beats a minute. The nurse ran in and started messing with the million machines that were hooked to you. She gave you some shot in your IV that was't helping. I cried out "No David I'm not listening to you this time, I can't do this, you can't make me, please don't make me" your heart rate shot up again to 300. I was crying, feeling so defeated but I knew so I leaned down to your ear and told you I understood now. I knew that was you talking to me telling me you were ready to go and I was answering your heart lyrics by saying yes, I heard you. I knew I was being selfish wanting you to stay but my heart was breaking to let you go. As soon as I told you ok your heart rate slowed down to normal again. I knew in my heart you were trying to tell me to let you go. I was just trying to convince my heart.
Yea I'm crying too as I type this.
At 4:30 pm they took you, me and Rick down to the 2nd floor to the operating wing to get ready. Since you are an organ donor it meant that the minute your life ended they would begin to remove your organs before they were damaged. That is why we were in the OR. They took you in to prep you for surgery while Rick & I got suited up in surgery cloths, including masks so that everything was sterile. While they prepped you for surgery they kept us in another room. They didn't want us to see this part so that our time with you was more personal. The coordinator told me that at this time they would be removing the respirator from you because it's a little scary witnessing and they were protecting us. It seemed like forever waiting and I was worried that something had happened. I wanted to go in, this was my son and I was feeling that panic come back but I stayed quiet & just sat there telling myself that you were ready, you were in control.
They called us into the OR and directed me to this area towards your head. The surgical sheets were up so I couldn't see the people on the other side. It reminded me of when you were born. Since I was having you by C-section without labor my prep before surgery was spent watching them get everything ready including placing surgical sheets that attached near my shoulders and reached up to a pole overhead blocking my view. I was worried I'd see the surgeons all standing around waiting like vulchers to harvest and it's not like that at all. The surgical sheets were like a tunnel to you where I got to be very close to your face and thats when I reaized you were resporator free, I could see your whole mouth and lips. I missed your face, I was crying and whispered how much I loved you. I told you I was so scared. I asked you how was I supposed to live without you in my life, I've never gone a day without hearing from you or talking to you. I told you if you needed me to forgive you for anything I did, I forgave you. I didn't want you to have any unfinished business like the movies always show. The whole time I'm talking I'm watching you breathe on your own. My mind is panicking and I keep thinking "breathe David, keep breathing baby, please please please just breathe." Your nostrils would flair with each breath.
At around 3:30 I broke down. I knew the time was getting close. There was only 1 hour left. I panicked big time. I told you I couldn't do this, I didn't want to do this. I told you to just wake up and lets just go home. I didn't know if I was making the right decission or not. I told you I couldn't live with myself if I made the wrong decission and all the "what if's" that I knew would haunt me the rest of my life. I was holding your face watching my tears soak you begging you. Rick was crying standing behind me because the pain was so unbearable at that moment I thought I couldn't possibly breathe.
At that very moment I'm breaking down hard your heart rate shot up to 235 beats a minute. The nurse ran in and started messing with the million machines that were hooked to you. She gave you some shot in your IV that was't helping. I cried out "No David I'm not listening to you this time, I can't do this, you can't make me, please don't make me" your heart rate shot up again to 300. I was crying, feeling so defeated but I knew so I leaned down to your ear and told you I understood now. I knew that was you talking to me telling me you were ready to go and I was answering your heart lyrics by saying yes, I heard you. I knew I was being selfish wanting you to stay but my heart was breaking to let you go. As soon as I told you ok your heart rate slowed down to normal again. I knew in my heart you were trying to tell me to let you go. I was just trying to convince my heart.
Yea I'm crying too as I type this.
At 4:30 pm they took you, me and Rick down to the 2nd floor to the operating wing to get ready. Since you are an organ donor it meant that the minute your life ended they would begin to remove your organs before they were damaged. That is why we were in the OR. They took you in to prep you for surgery while Rick & I got suited up in surgery cloths, including masks so that everything was sterile. While they prepped you for surgery they kept us in another room. They didn't want us to see this part so that our time with you was more personal. The coordinator told me that at this time they would be removing the respirator from you because it's a little scary witnessing and they were protecting us. It seemed like forever waiting and I was worried that something had happened. I wanted to go in, this was my son and I was feeling that panic come back but I stayed quiet & just sat there telling myself that you were ready, you were in control.
They called us into the OR and directed me to this area towards your head. The surgical sheets were up so I couldn't see the people on the other side. It reminded me of when you were born. Since I was having you by C-section without labor my prep before surgery was spent watching them get everything ready including placing surgical sheets that attached near my shoulders and reached up to a pole overhead blocking my view. I was worried I'd see the surgeons all standing around waiting like vulchers to harvest and it's not like that at all. The surgical sheets were like a tunnel to you where I got to be very close to your face and thats when I reaized you were resporator free, I could see your whole mouth and lips. I missed your face, I was crying and whispered how much I loved you. I told you I was so scared. I asked you how was I supposed to live without you in my life, I've never gone a day without hearing from you or talking to you. I told you if you needed me to forgive you for anything I did, I forgave you. I didn't want you to have any unfinished business like the movies always show. The whole time I'm talking I'm watching you breathe on your own. My mind is panicking and I keep thinking "breathe David, keep breathing baby, please please please just breathe." Your nostrils would flair with each breath.
What I saw is so etched into my mind that I will never ever forget it as long as I live. It haunts me and gives me peace at the same time. I had my forehead against your check telling you I forgive you, I raised my head and looked at you and saw you were smiling. You had the biggest goofy David smile I've ever seen. It was an open mouth, full of teeth joyful smile that nearly dropped me to my knees because I thought you were awake with such an amazing facial expression. I turned to Rick and said "Oh my God he is smiling, do you see him"? Rick was crying and saying yes he could see it. I could hear people crying on the other side of the surgical sheet. I watched you take a few more breaths and then I felt all the life in the room be sucked out like a giant vaccum. I felt you leave and that emptiness to this day fills me because I have never felt that void fill back up, you was gone. My baby was gone.
My brain was telling me that it was time to go but I wasnt there, I was sucked out by the vaccum. I looked down at you again and your eyes were open, void of all life but you were still so beautiful and perfect.
I was quickly escorted out of the room and all I remember was Rick grabbing me as I started dropping down in the hall as my legs gave out. I'm in full surgical gear, I just witnessed my son dying and he was being operated on that very second just 10 feet away on the other side of those swinging doors. I broke so hard that I don't even remember what happened. Rick was breaking just as hard and all we could do was hang on to each other. It was like a pain that came from the depths of my soul. We walked to the elevators & were to go up to some floor where the rest of my family were suppose to be waiting on us. I don't even remember it. When we walked into this hall we found my family standing there looking shell shocked. I kept asking did this really just happen, did my son really just die? People were coming in and hugging us but we couldn't take our eyes off each other. I'm sure Rick was thinking the same thing I was, it just couldn't be real, things like this don't happen, we just watched our son die and now he's being operated on.
My brain was telling me that it was time to go but I wasnt there, I was sucked out by the vaccum. I looked down at you again and your eyes were open, void of all life but you were still so beautiful and perfect.
I was quickly escorted out of the room and all I remember was Rick grabbing me as I started dropping down in the hall as my legs gave out. I'm in full surgical gear, I just witnessed my son dying and he was being operated on that very second just 10 feet away on the other side of those swinging doors. I broke so hard that I don't even remember what happened. Rick was breaking just as hard and all we could do was hang on to each other. It was like a pain that came from the depths of my soul. We walked to the elevators & were to go up to some floor where the rest of my family were suppose to be waiting on us. I don't even remember it. When we walked into this hall we found my family standing there looking shell shocked. I kept asking did this really just happen, did my son really just die? People were coming in and hugging us but we couldn't take our eyes off each other. I'm sure Rick was thinking the same thing I was, it just couldn't be real, things like this don't happen, we just watched our son die and now he's being operated on.
It's crazy how our minds work when we are in shock. I'm so far gone I can't talk but I remember the organ donor coordinator telling me before your surgery that they had recipients for your organs and asked me if I wanted to know about them. I didn't want their names but I wanted to know about their lifes. The man getting your lungs is a doctor who is married and has 2 daughters, he loves reading history books and working in his flower garden. I was sitting in that room after just witnessing your death, on the verge of screaming when suddenly I said to the coordinator that she needed to inform the very low-key doctors family that at any time he kicked back and popped open a keystone lite beer and cranked up some death metal music not to panic because it was just my son chilling out. The room was so quiet I could hear everyone's heartbeat, then laughter rolled through the room adding to the insanity I was feeling. Suddenly Rick whispered in my ear "lets get out of here". He was pealing the surgical cloths off me while we hugged nurses that were crying and thanking them for loving our son. Next thing I know we are sitting in our car, just Rick and me alone.
We sat in total silence for a while. I know it was shock. I started crying and ask Rick if we really just went through that. He was trying to start the car and was shaking so bad that he dropped the keys. I wasn't sure if he should be driving at that moment but I couldn't seem to form the words. I glance up to the 4th floor to your window that I've spent the last 10 days looking out of, then I looked down to the 2nd floor knowing somewhere in there you were in the middle of surgery and we were outside in the car. We start driving in the direction of home as I look back at the hospital and thought of you being in that operating room at that very moment and I was racing home. Something was so wrong with this picture. I could hear Rick crying while he was driving and wondered if I was going to live. A part of me hidden deep was hoping I wouldn't.
We are on the highway and the cell phone rings. Rick answers and we are told the operation was over. It was your nurse. She said that she could tell me that you saved several life's that night. A young man in Pennsylvania was getting your liver, another person was getting one of his kidneys. I don't remember if she said more because I was thinking that there was a mother holding her son's hand crying and praying to God that a miracle happen and her son would get a match on an organ that would save her sons life. That mother's prayer was answered and I knew your response would be "that's so cool".
The cell phone rang again and this time it was my sister. She said for us to look to our left because God was giving us another sign.
I will never be able to describe the sunset Monday night to give it justice. There was this group of clouds all poofy and gold. Light was streaming though them with rays of sun light shooting in several directions. There were smaller clouds all around the big cloud and each one had these trails of cloud or something that were shaped like angel wings. Like a wisp. It was on each little cloud. The center of the huge cloud opened up and the most brilliant golden light I've ever seen shown through. Rick started crying and turned to me and said "do you see that? David is making one major grand entrance into heaven" The cell phone was going off the hook with every friend and family member calling and freaking out over the same thing. They were all witnessing this amazing sunset and everyone thought the same thing I was, that it looked like heaven just opened up with angels surrounding the entrance. I thought Rick was going to wreck the car because we were watching it and not the road. I found out today that my sister took pictures of it and is sending them to my email. I can't imagine a picture capturing all that.
Now I know why you had such an amazing smile on your face when you died, you were looking into the eyes of God. I can't imagine at that very moment what you were seeing? It made me think of that song by Mercy Me called "I Can Only Imagine".
Tomorrow (Wed) we are having your visitation. It's going to be filled with music by bands you loved like Shinedown, I've picked your favorite song Call Me that told your struggles and the song Simple Man that you proclaimed was from you to your son's. I also picked out I Can Only Imagine by Mercy Me just because of that sunset you gave us and that beautiful smile you left me with. I'm sure my 90 yr old great uncle who is going to preach at your funeral will be a little confused by the music but this is about celebrating my son David's life, your life and it's more precious that oxegyn. I've left him strict orders that he is not to turn this into church. I'm sure he's ignoring me. lol (old people, humph)
Today was spent doing a lot of remember when stories. But then everyday with this dysfunctional family of mine is filled with remember when stories when it starts with your name. I call them shock and awe stories. That's when your kids and their friends get old enough that they start telling you all the things that they did their whole life that would have shocked the living hell right out of you if you knew they were the one that pulled off this or that. I've done a lot of laughing and crying today. I think I'm still in shock.
My heart is broken that I will not get to see & touch you again until my time comes to go to heaven, and trust me, I'm going there even though I'm one big sinner deluxe. Me & God are like this x. I'm His black-sheep family. I also know that I was given a gift this past week that many people don't get when their loved one dies. I got to spend my week holding, loving, kissing and talking to my live son who I know heard everything I said. I got to pour my heart out to him, let him know my fears, let him walk me through this pain while God really carried me through it. If you could get a chance of one week to spend with your loved one before they died to pour your heart out to them you would cherish it. I didn't know at the time that was what I was doing because I was just talking to you, expecting you to heal. I know now that God & you knew I wouldn't have been able to go through this if you had just died that night so you took me on a journey until I knew in my heart to let you go. It doesn't mean my heart aches less. I'm constantly breaking and feel like I'm in a fog most of the day but I have a peace about my you that I can't explain without telling this whole story I've just told.
I know this was long & for some it's too long & sad to read but i know it was also therapeutic for me to write it down so just know that this is just another step in my healing.
Thank you all for keeping us in your thoughts & prayers. It means so much to me. I'll be back one day. Right now I feel like im drowning and if I survive I'm going to have to learn how to swim again.
We sat in total silence for a while. I know it was shock. I started crying and ask Rick if we really just went through that. He was trying to start the car and was shaking so bad that he dropped the keys. I wasn't sure if he should be driving at that moment but I couldn't seem to form the words. I glance up to the 4th floor to your window that I've spent the last 10 days looking out of, then I looked down to the 2nd floor knowing somewhere in there you were in the middle of surgery and we were outside in the car. We start driving in the direction of home as I look back at the hospital and thought of you being in that operating room at that very moment and I was racing home. Something was so wrong with this picture. I could hear Rick crying while he was driving and wondered if I was going to live. A part of me hidden deep was hoping I wouldn't.
We are on the highway and the cell phone rings. Rick answers and we are told the operation was over. It was your nurse. She said that she could tell me that you saved several life's that night. A young man in Pennsylvania was getting your liver, another person was getting one of his kidneys. I don't remember if she said more because I was thinking that there was a mother holding her son's hand crying and praying to God that a miracle happen and her son would get a match on an organ that would save her sons life. That mother's prayer was answered and I knew your response would be "that's so cool".
The cell phone rang again and this time it was my sister. She said for us to look to our left because God was giving us another sign.
I will never be able to describe the sunset Monday night to give it justice. There was this group of clouds all poofy and gold. Light was streaming though them with rays of sun light shooting in several directions. There were smaller clouds all around the big cloud and each one had these trails of cloud or something that were shaped like angel wings. Like a wisp. It was on each little cloud. The center of the huge cloud opened up and the most brilliant golden light I've ever seen shown through. Rick started crying and turned to me and said "do you see that? David is making one major grand entrance into heaven" The cell phone was going off the hook with every friend and family member calling and freaking out over the same thing. They were all witnessing this amazing sunset and everyone thought the same thing I was, that it looked like heaven just opened up with angels surrounding the entrance. I thought Rick was going to wreck the car because we were watching it and not the road. I found out today that my sister took pictures of it and is sending them to my email. I can't imagine a picture capturing all that.
Now I know why you had such an amazing smile on your face when you died, you were looking into the eyes of God. I can't imagine at that very moment what you were seeing? It made me think of that song by Mercy Me called "I Can Only Imagine".
Tomorrow (Wed) we are having your visitation. It's going to be filled with music by bands you loved like Shinedown, I've picked your favorite song Call Me that told your struggles and the song Simple Man that you proclaimed was from you to your son's. I also picked out I Can Only Imagine by Mercy Me just because of that sunset you gave us and that beautiful smile you left me with. I'm sure my 90 yr old great uncle who is going to preach at your funeral will be a little confused by the music but this is about celebrating my son David's life, your life and it's more precious that oxegyn. I've left him strict orders that he is not to turn this into church. I'm sure he's ignoring me. lol (old people, humph)
Today was spent doing a lot of remember when stories. But then everyday with this dysfunctional family of mine is filled with remember when stories when it starts with your name. I call them shock and awe stories. That's when your kids and their friends get old enough that they start telling you all the things that they did their whole life that would have shocked the living hell right out of you if you knew they were the one that pulled off this or that. I've done a lot of laughing and crying today. I think I'm still in shock.
My heart is broken that I will not get to see & touch you again until my time comes to go to heaven, and trust me, I'm going there even though I'm one big sinner deluxe. Me & God are like this x. I'm His black-sheep family. I also know that I was given a gift this past week that many people don't get when their loved one dies. I got to spend my week holding, loving, kissing and talking to my live son who I know heard everything I said. I got to pour my heart out to him, let him know my fears, let him walk me through this pain while God really carried me through it. If you could get a chance of one week to spend with your loved one before they died to pour your heart out to them you would cherish it. I didn't know at the time that was what I was doing because I was just talking to you, expecting you to heal. I know now that God & you knew I wouldn't have been able to go through this if you had just died that night so you took me on a journey until I knew in my heart to let you go. It doesn't mean my heart aches less. I'm constantly breaking and feel like I'm in a fog most of the day but I have a peace about my you that I can't explain without telling this whole story I've just told.
I know this was long & for some it's too long & sad to read but i know it was also therapeutic for me to write it down so just know that this is just another step in my healing.
Thank you all for keeping us in your thoughts & prayers. It means so much to me. I'll be back one day. Right now I feel like im drowning and if I survive I'm going to have to learn how to swim again.